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by monotone666
2785 days ago
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I’ve been diagnosed with CFS. I had a diagnosis of Kawasaki disease, autoimmune vasculitis, at age 3. And reoccurring fevers and sore throats every three months (coresponds with lifecycle of EBV). Pneumonia and mono as a teenager. I’ve had a mild case of CFS for a little over six years that became more severe three years ago, both following mono infections. I’m unable to work without a recovery period that lasts for days. During a year long infection with the Epistein Barr Virus I lost my sense of smell, started losing my hearing, have problems with depth perception/driving, and the sustained focus required for reading. I lost my ability to do circuit analysis and BASH. I used to be a high level athlete and lost half my strength. I got very lucky and discovered that iodine can treat Epistein Barr Virus, otherwise the prognosis for a EBV infection of longer than 6 months (CAEBV) is death. The requirements to get disability in the United States for the disease of CFS basically requires a diagnosis of CAEBV plus a impossible to prove “subjective” criteria that basically guarantees you will have to go in front of a judge and be subjected to their opinion of the condition. When shopping for a lawyer I was refused to even have it on my application as a disabling condition despite it being listed in the social security “blue book.” I’m also missing 10% of my mitochondrial DNA and have a gene which is the single largest risk factor for MS (also caused by EBV). I lost my mind during the last infection. The virus is interesting. It’s one of the most common viruses and has an ability to cause the body to “forget” adaptive immunity. It reproduces in response to low vitamin B12 levels or mitochondrial dysfunction. |
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*edited spelling