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by drogonmead 2883 days ago
That sounds awful. I'm so glad she came through. Thanks for the note about ritux. Honestly, the neurologist we're dealing with hasn't had a lot of cases like this, so any more info we can get is helpful. It's been interesting to be in a position where I've become much more familiar with the literature than almost every doctor I speak with.

Although we're still in the thick of it, I also want to find ways to help others and have a few ideas. An email address (anonymous on HN) is in my profile if you'd be up for connecting.

1 comments

sounds great - will drop you a line.