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by teekno 2886 days ago
> I don't want to spread FUD but why would ANYONE in their right mind give their DNA to a company in Silicon Valley that is explicitely using Google as a model for Data privacy ?

My father has Parkinson's and provided his DNA to 23AndMe using one of their free kits [1]. Companies like this represent a chance of finding a cure. There are certainly concerns with companies accumulating large amounts of genetic data, but huge data sets are required for deep learning and other AI methodologies. Sharing one's genetic data, and allowing other companies to form partnerships to gain access to that data, will likely represent a key step in identifying the cause (and hopefully potential cures) for such diseases.

[1] https://www.23andme.com/pd/

1 comments

There are huge benefits, I agree with you. My concern is that 23AndMe is a for-profit company advertising the huge benefits in order to push a for-profit agenda.

What I would like to see is some tighter regulations around all of this: No sharing of specific data, complete anonymization of all the data sets would be a good start

I'm under the impression that you need to opt-in to any research studies that would use your genetic info (though I'm not 100% sure).