[graeme]

You still have fatigue after eating even after avoiding gluten - is that from residual damage?

I'm curious because I have similar fatigue symptoms. But I had stopped eating wheat, so I had assumed it wasn't celiac. (Can't test without doing a gluten challenge)

But I completely agree that being self employed is the best way to handle this, and also that it is a major setback to productivity. My symptoms have improved in the past eight months or so and it's felt like an incredible blessing to simply have some normal days.

[code_duck]

I have some sort of condition that makes me unable to swallow solid food - after I swallow it. We don’t know what it is yet. It is similar to achalasia or diffuse esophageal spasm. It could be from damage from celiac, or it could be it’s own thing. I don’t have the insane immune reactions to food anymore, which caused most of my fatigue, but I still have constant pain, headaches, regurgitation after eating. I’m slowly starving because I simply cannot eat enough food to stay healthy, which leaves me very low in energy. I’m now just barely at a healthy weight, at 18 BMI.

There is something called refractory celiac, which is permanent digestive damage. My mother had that and much of her small bowel had to be excised. I may have that issue. I’ve recently been to the hospital and have a few biopsies pending.

[graeme]

Wow, that's absolutely brutal. I hope you are able to get it resolved.

[code_duck]

Thanks! It’s true; judging by /r/achalasia, esophageal dysfunction of this level is bad enough on its own, without celiac.