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by toxic_
3085 days ago
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I developed narcolepsy in my teens and I can absolutely relate to how you feel. Everyone just thought I was lazy, malingering or, in the case of my general physician, depressed. It took years before I could even see a neurologist, after which an official diagnosis was quickly made. If you're not already on sodium oxybate (Xyrem), I can't recommend it enough; it's the only thing that puts me in a sound, restorative sleep for more than a few hours. I'm in the UK where prescriptions for Xyrem are almost impossible to obtain. Fortunately, the precursors for its active ingredient, GHB, are inexpensive and easy to acquire, so I just synthesize it myself. Technically it's illegal, but it would take an especially brave magistrate to convict me for having to overcome deficiencies in the NHS. |
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