[tom_b]

And it's only worse at the staff level. Even getting patient data variables for patients consented to IRB-approved studies is hit-or-miss. Groups build barriers by wanting to "work with" principal investigators (PIs) instead of providing data to PIs and study staff. Data moats are everywhere.

My own group (at a research center attached to a university school of medicine) has switched our focus from helping PIs with clinical data management and applications to helping manage research samples and sample processing, mainly by doing housekeeping around genomic processing across different lab teams.

It's kind of hard to convey just how much I would warn devs away from healthcare and healthcare research IT gigs.