[edw519]

savemylife, my comment was meant for your well being, not ours.

Nothing can be more important that saving a life so your threads are not only appropriate, they are most welcome.

I don't know if I could be as brave as you are in your quest, but obviously you have been through quite a bit and I trust you know what you're doing.

I consider diagnosis to be a subset of health care, hence my concern. Take everything here with a grain of salt. I hope you find a trusted health care professional, and more importantly, good health. Best wishes.

[savemylife]

OK, in that case I totally misunderstood. Apologies, and thanks for your concern.

It is indeed hard to know what to make of a lot of the suggestions I receive here, but the quality level of the comments is way above the kind of discussion you would get in most places by posting such a story ("have you tried crystals or magnets?") Already it has turned up something (Celiac) that apparently has been entirely overlooked by all of the doctors I have seen thus far. Even if that turns out to be a dead end, it's worth knowing about and investigating.

[kellishaver]

I think the important distinction here is that you're not just saying "Hey, Internet, what's wrong with me?" and leaving it at that. You've been under the care of (many?) physicians and continue to be. So you're not taking the Internet's word for it and rushing off to try some hair-brained "cure" (Trying a gluten free diet, even if that's not the issue, certainly won't harm you. I'm sure if the Internet had said "drink a bucket of Draino" you'd have drawn a line). You're just looking for information and ideas beyond what you and the doctor have already discussed/tested for. You're just exploring other possibilities and then following up on that with your doctor. I'm glad to see you're finally starting to get some answers and I hope you're able to, at least, get to the bottom of all of these problems.

Keep in mind, too, though, you may not have one definitive diagnosis. You could have _______ and also ________, or ________ caused by ________, which then makes ________ worse. The body is a complicated thing.

[Robin_Message]

Did anyone else instinctively highlight the end of this to see the spoilers?

[prawn]

Only after reading your comment!

[kellishaver]

The sad part is, after reading his reply..... so did I.