[mclide]

The key to make sense of the data for these diseases is a record of patient’s symptoms. Assembling useful datasets is not only a question about access, but also about resolving human factors to successfully collect the essential information from patients.

A major challenge is to get a large number of patients to continuously track their symptoms. Most want to know what’s in it for them. It takes substantial incentives for people to regularly report outcomes and use wearables for data collection. Until we can make the marginal cost hit zero, they need to benefit from their efforts and investment, preferably instantly.