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by kranner 3593 days ago
I'm sorry but I don't understand. What red flags? If I come into the hospital with detailed data on what pills I took and how symptoms varied from day to day (without offering my own interpretation as to causes), compared to coming in with no history, how is the former a cause for suspicion?

As a haemophilia patient who carries a decade+ log of infusions (Factor VIII in my case) I have never been met with any kind of suspicion or defiance by doctors. In fact this has persuaded doctors in unfamiliar hospitals (when I have a bleeding episode while travelling) to give me only as much Factor VIII as I have needed historically, and not a much larger amount based on my body weight. (Large amounts of Factor VIII seem to be a trigger for inhibitor formation so I am interested in taking as little as needed.) Factor VIII assays on the other hand seem to present a different result every time I get them done (varying from <1% to 25%).

I can assure you that any data geek who bothers to note this stuff down is very, very concerned about keeping accurate logs.

1 comments

Ah, I think I misunderstood your situation. Yes, your specific case I think warrants that kind of specific, careful monitoring.

I was speaking more generally about people who don't have significant past medical history who arrive with superfluous data.