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by toomuchtodo 3634 days ago
My entire genome is publicly available through Harvard's Personal Genome Project. I weighed the pros and cons, and settled on helping contribute to progress was more important than my fear of the unknown future.
3 comments

Me too! https://my.pgp-hms.org/profile/hu80855C

let me know if you find anything interesting. When I had it sequenced, the genetic counsellors said I had none of the common disease risk factors, which seemed a bit surprising.

I have a background in biology, have done extensive work with genomic data, and weighed the future risks pretty carefully. Ultimately I didn't see any real problem with posting my raw BAM files and I assume a dedicated person could identify me if they tried.

I do appreciate that there is a lot of public good being done with the information, my comment came off more doom-and-gloomy than I had hoped. It just seems a bit risky to me, its the sort of thing that can't really be anonymous and that gets my hackles up so to speak.
And if you want it to be available, it should be. I haven't seen anyone arguing that people who consent shouldn't be able to make their info public.

My concern is for people who don't want that info to be made public