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by rf1331 3776 days ago
Do you not worry that people who are not researchers, who are providing essentially the "TL;DR" of a disease, will provide incomplete or potentially misleading advice?
4 comments

In addition to what rf1331 said, to what extent is hdphealth liable for a case where e.g. someone reads that treatment X is beneficial for their case, but in fact someone got the facts slightly wrong and it made their case much worse?
https://www.hdphealth.com/2016/02/16/the-research-on-biopsie...

Notice the disclaimer at the bottom.

As well, we link to the research article itself in every scenario.

At some point we should try to add a "Share with your doctor" button.

Thanks for the feedback.

I think a niche certainly exists for your product...

If you could manage to land an ad in AARP-The Magazine for instance, I think you'd be pleasantly surprised at the response...that demographic is of an age where many common ailments begin to show up...

I'd caution you to give the idea of adding a "Share with your doctor" option very careful thought before implementing it...

Some physicians don't mind patients that attempt to research their ailments online prior to an appointment...others dread seeing patients arrive with printouts from the internet...

This is anecdotal from my wife's side of the family, which includes 2 physicians, a dentist, and a physical therapist...

Having said that, times are changing...

Good luck!

Thanks. We've had an overwhelming response even from just the tech community submitting articles on all sorts of things ranging from hypopharangeal cancer and beyond.
Of course we do.

This is we try to adhere to common translational research guidelines. The focus is not on opinions but understanding and characterization of the research out there.

Over time, we'll publish these guidelines. As well, in each summary there's a disclaimer that states this is not medical advice. Any action should be discussed with an experienced medical licensed professional.

I would rather have incomplete knowledge of a topic than none. The toughest part of learning something, like so many other cases, is in getting started.

Also, I can't be sure pending research into this, but I would be surprised if these reports ended up worse than the typical news story attempting to cover such things.

I think the more important part of that sentence is "or misleading".

"We don't know what happens if you drink cyanide." is different than "You should drink cyanide."

I think I've addressed your concern below.