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Ask HN: Pancreatic Cancer Resources
9 points by LinkPlug 3816 days ago
This is still very new to us and I couldn't think of a better place to try to get a head start on beating this.

I hope when future hackers go searching for this on HN that they will find a list of the best resources.

Thank you :)

5 comments

Pancreatic cancer is a tough one. Try reading some stuff about Randy Pausch, who did the "Last Lecture"

http://www.cmu.edu/randyslecture/honor/index.html

Perhaps there are organizations or treatments that you will learn about.

Also, this PBS series on cancer was informative: http://www.pbs.org/show/story-cancer-emperor-all-maladies/

Think it might be on Netflix. It's based on a best-selling book:

https://www.goodreads.com/book/show/7170627-the-emperor-of-a...

Dealing with the diagnosis and treatments/surgery is indeed tough physically and psychologically.

Physically it's important to understand how to deal with things day to day. Article is on nutrition post-diagnosis from John Hopkins. http://pathology.jhu.edu/pancreas/TreatmentNutrition.php?are...

Psychologically the whole team (family/friends/practitioners) need to be on the same page and transparent. http://www.kevinmd.com/blog/2013/03/fine-balance-hope-cope-c...

Patrick Swayze had this condition and despite his prognosis filmed a movie and did his own stunts.

This might not help post-diagnosis but maybe will help a lot of people in the future. As they say the best type of care is preventative care.

Pre-Cancer screening (Gates & Bezos invested) http://www.grailbio.com/?ref=producthunt

Here's a better article from the MIT review http://www.technologyreview.com/news/545326/illuminas-bid-to...

My beloved is currently back in oncology. Her career has included working in hospice, geriatrics and alzheimer's.

The place to start irrespective of having pancreatic cancer or not is with a living will and an advanced health directive. Even if you're going to freeze your head, you'll likely benefit.

http://www.mayoclinic.org/healthy-lifestyle/consumer-health/...

Good luck.

This site has a video about someone who had pancreatic cancer and was cured:

http://www.cancermoonshot2020.org

A past HN discussion about cancer [not pancreas specific, though] https://news.ycombinator.com/item?id=9628682