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by developer1
3898 days ago
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I try not to use offensive language on HN, but are you fucking kidding me? You actually expect a single company out there to not keep your personal information? The type of system you are looking for will never exist. Ever. The only reason a company wants your DNA to begin with is either to profit from its data, or to perform crowd-sourced research that requires keeping your information indefinitely. Your comment goes far and beyond a fantasy. There will never be anything positive to gain from having your DNA analyzed. Corporate, hospital, "non-profit"... there is no such thing as a secure outlet from whom to obtain your DNA profile. There will always be a record, even if it's "erased" but still recoverable from the raw disk. Either you don't understand how corporations and modern government work, or you are insanely naive about the possible benefits from DNA analysis compared to the politicians and corporate psychopaths who will find a way to benefit from it. If you're willing to hand over your biological fingerprints to anybody, you may as well walk into your local police station and admit to a murder you haven't committed. Even if 99.99% of people submitting their DNA for analysis never see any negative consequences, the other 0.01% are going to have their lives ruined because of some supposed family association to a criminal. These days, suspicion is equal to guilt beyond a doubt. If one out a million people are falsely chased down based on something like DNA, that is one person too many. The possibility that you have some horrible abnormality that can be detected via DNA testing is so astronomically low. Stop thinking about the interesting science behind what you can learn about your body. Instead, be very concerned about the fact that there are people out there interested in nothing other than having power over others. Nobody should be submitting themselves to this horrendous risk. I cannot imagine how someone would even consider submitting themselves to such a process. I took a season pass to my local amusement park; they strongly suggest you provide your thumbprint instead of taking a photo for your ID. It's insane. Obviously the police or state government can force this park with hundreds of thousands of fingerprints to submit to database searches. Who the hell offers to provide their fingerprints to an amusement park, in order to save the 5 minutes of inconvenience required to go have your photo taken? "Stupid sheep" is the only phrase that comes to mind. |
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Yes, I do, actually. This kind of response is exactly the kind of attitude that perpetuates the fly-by-night shady handling of our private information that's all too pervasive these days. This bullshit stops only when laws are on the books that bring down the rain of hell if a mere squeak occurs outside regs - HIPPA is a great example of this.
I've had a 23andme test kit sitting in the closet for years now at this point. I never was able to push past the hesitation they would have my data, forever, and would more than likely be persuaded at some point down the road by the almighty dollar to distribute it, as it didn't come with HIPPA protection.
I don't have all the answers, but I absolutely am game for being a part of the solution.